"I want to be a Ballerina when I grow up" 5 year old Tilara from Midleton told The East Cork Journal on Saturday last when she came to Youghal with her Mum Natasha, Dad Stephen, sister Svea and brother Kayden, to feature on Noel Cronin's programme, CRY104fm.
Diagnosed with Spastic Diplegia Cerebral Palsy at the age of just one year, Tilara's movement is restricted and she finds difficulty in walking, sitting, rolling about or crawling. Her greatest challenge, however, is that this beautiful little girl is in constant, ongoing chronic pain and spasms which also affect her ability to sleep. SDR Surgery in the USA would provide Tilara with a pain free life, and she has been accepted by Dr. T.S. Park. The cost of this procedure and care will cost a minimum of €140,000, which is not possible for this young family.
Clive Reed is a good friend of the Holmes family and is helping to raise funds for the surgery. Speaking with The East Cork Journal Clive said "Time restraints for the surgery mean that it must be done very soon, but certainly before August, and the Trust for Tilara is hoping to raise this money with the support of the people of East Cork. No child, ever", Clive said "should be in pain"
Dad Stephen and Natasha said "it is very hard to see Tilara in pain. She is a really good child, and we just hope to be able to avail of this wonderful opportunity in the USA to give a better quality of life to our little daughter".
Fundraisers include the Earthquake Cycle 2017 which takes place in Midleton on Sunday next, 5th March with a 75km Cycle Sportif 6 Rider Team Challenge and a 10k 'Tremor Cycle' for Novice cyclists. HQ and registration will be held on Saturday 4th from 4pm to 6pm, and from 7am on Sunday at St John the Baptist NS on Dungourney Road.
The Ribbon will be cut and the cyclists will head off down the Main Street of the town, with the Teams starting at 8.30am and the Sportiv at 9.30am.
Tilara had the last word with The East Cork Journal when she told how she is a pupil at St John the Baptist school in Midleton. "My teacher's name is Ms Sweetnam and she gives us homework. My best friend is Emily and we love playing with our dolls, and my very best favourite doll is called "Ariella", said this charming 5 year old. When asked what she would like to be when she 'grows up' she smiled broadly and said "I'm going to be a Ballerina".
Please support the various fundraisers in the East Cork areas, and help make this little girl's hopes and dreams come true.