Tilara Costa Holmes is a beautiful, intelligent, mischievous 5-year-old little girl who lives in Midleton Cork. At 12 months old, she was diagnosed with Spastic Diplegia Cerebral Palsy.
Tilara’s condition means she experiences ongoing chronic pain which she suffers from each and every day. These painful spasms continue into every night and affect her ability to sleep. Her muscle problems restrict movement essential for normal activities such as walking, sitting, crawling and rolling - all activities most other 5-year-old children and their parents take for granted.
Despite these challenges, Tilara is a very happy little girl who loves her school and her friends in St. John the Baptists Primary School, Midleton.
Tilara has luckily been accepted by Dr. T.S. Park to undergo life changing surgery in the USA which will relieve her chronic pain and help her to walk. €140k must be raised to make this happen. A tough task, however it is one her family and supporters are determined to achieve. To date we have raised almost €36k.
SDR is a complex spinal surgical procedure that involves cutting some of the nerve fibres that cause the Spasticity in Cerebral Palsy. SDR is a very individual and expensive surgery and requires an intense aftercare programme.
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